HRC Paediatric Cardiology Nurse | Guy's and St Thomas' NHS Foundation Trust

This job presents an exciting opportunity for a dynamic and dedicated nurse to shape the development of new children’s healthcare technologies (HealthTech), ensuring that the voices of patients and families affected by congenital heart disease (CHD) are heard.

By working with patients, families, carers and staff, putting their experiences at the heart of this work, and promoting their needs to the HealthTech Research Centre (HRC, a new clinical-academic research initiative at our Trust – read more below), we can ensure that new technology is tailored to the children and young people who need it, acceptable to those who use it, and workable for the services that provide it.

Curating an unmet needs register

Engaging with the CHD networks served by Evelina London Children’s Hospital (ELCH) and Royal Brompton Hospital (RBH)and Harefield Hospital, the post holder will gather,characteriseand curate a register of unmet needs, providing a foundation on which new HealthTech can be researched,designedand developed.

Unmet needs might include: the challenges faced by patients andcarers,living with CHD; and the difficultiesencounteredby NHS staff in their ambition to deliver excellent, highlypersonalised, and inclusive care.

Administration of thePaediatricTechnologies HealthTech Research Portfolio

New submissions to the unmet needs register will be reviewed,consideredandprioritisedtwice a year, by a multidisciplinary panel of patientadvocate, clinical, academic and innovation experts.

In addition to sitting on the panel, the post-holder willbe responsible forcoordinating meetings and interacting with core HRC staff (detailed description below) to convey our findings and promote unmet needs for dissemination.The post-holder will supportestablishedresearchprojects,including:protocol review,study setup, interaction with R&Dand sponsor,ethical review,documentation,recruitment,data collation and reporting,financial reporting, presentation and dissemination of findings andmaintenance of research portfolios and registries.

GSTThasbeen fundedas aHealthTech Research Centre (HRC) focusing on cardiovascular and respiratory health,supportingtranslationof novel technologies, devicesand digital solutions designed to improve health and care. This will closethe gap between the unmet needs of patients,researchand commercial innovation, accelerating development of technologies that improve health,patientexperienceand outcomes.The HRC’score team servesfourclinicalthemesand a researchmethodologytheme.

This means workingwith patient representatives and staff with a range of clinical (nurses, cardiologists, psychologists, clinical scientists), scientific (researchers, experts in AI and artificial heart technologies) and professional backgrounds (commercial innovation, intellectual property).

Depending on the applications received, this might be through a job share.

Detailed job description

This post will sit within the clinical theme of the HealthTech Research Centre (HRC) dedicated to children’s HealthTech research. This is called “Congenital Heart Diseasesin Children –PaediatricTechnologies”.The theme aims to narrow the gap between the unmet health and care needs of children and families living with congenital heart disease, and the HealthTech researchers (including academic and industrial partners) who arebest-placedto develop innovative solutions.

They will havedutyof care in supporting children and their families throughout their participation in any project activity, acting as the participants’ advocate at all times.

The HRCPaediatricCardiology Nurse will have responsibilityfor,day-to-day delivery and adjusting plans as required to ensure that risks and issues are mitigated.

This might be through direct, in-person conversation, presentation at network events, secondary interactions with staff, receiving electronic submissions or in response to promotional materials.

The post holder will join andorganisethePaediatricTechnologies HealthTech Research Panel (“the panel”), presenting the unmet needs they have found, supporting their promotion to the core HRC teams for research support.Where we are successful in gaining HRC support and are able to set up projects in response, the post holder will liaise with project teams, the panel, and academic and industrial partners.

It is expected that the specific projects managed by the post holder will change over time as the portfolio of work changes.

Main responsibilities

• Actively gather unmet needs within a provided,computeriseddatabase, ensuring that as far as possible, records areaccurate,completeand current.
• Organisemeetings of thePaediatricTechnologies HealthTech Research Panel.
• Coordinate interactions between key stakeholder groups and thePaediatricTechnologies Panel.
• Liaise with the Core, Methodology and PPI teams of the HRC to share unmet needs and coordinate the support of projects in thePaediatricTechnologies portfolio.
• Interact with collaborative partners (including academic researchers and industrial developers) to understand and ensure effective HRC support.
• Support the development of project plans and the delivery of agreed milestones andobjectives.
• Provide project support to the individuals in the project team.
• Organiseproject meetings, ensuring that regular meetings areestablished, reports are produced anddisseminatedina timelyway and actions are followed up – adjusting plans to accommodate complex and changing priorities.
• Set up andmaintainrisk andissueslogs. Working closely with more seniorprojectleads tomonitorandaddressrisks and issue resolution to ensure projects deliver to time,qualityand cost.
• Lead service level workshops with admin,managementand clinical teams. Produce presentation material and follow up information to introduce change projects and delivery plans.
• Communicate information on the delivery progress of the project(s) to key stakeholders asrequired.
• Provide scheduled highlight and exception reports per project, tracking milestones, for circulation to more senior project leads
• Co-ordinate minutes, agendas and papers for distribution in preparation for meetings, ensuring this is done in a timely manner.
• Support evaluation and audit of projects across sites andorganisations.

• Manage a delegated budget for own area of work to ensure best value for money, including signing off invoices,monitoringexpenditure and providing budgetary reports.
• Activelymonitorexpenditure against budget and address problems at an early stage.
• Support the commissioning and procurement of products, equipment, services, systems and facilities, as required for the delivery of the project.

• Support engagement plans for project to proactively ensure that positive and effective relations are developed andmaintainedbetween members of the team, all stakeholders including children, young people and their families and key internal and external stakeholders throughout the project.
• Act as a participant advocate enabling patients and families to make informed choices concerning their involvement in the project and /or research studies, ensuring advice and information is provided.
• To communicate effectively with children, parents/carersand families, including the provision of ongoing information,educationand support.
• Report any health concerns which occur whilst the participant is taking part in the study to theappropriate clinicianin a timely manner, and to the relevant members of project team or investigators
• To maintain the child’s and family’s confidentiality and safety at all times.
• Respond to concerns raised by participants and visitors in a proactive manner and take remedial action as necessary.
• Ensure that nursing practicescomply withTrust policies and procedures
• Support strategies to achieve acceptance,consensusand alignment of views, both formally and informally from senior managers and clinicians.
• Build strong professional relationships with other departments in order to promote a good workingenvironmentintegration of research and open channels of communication.
• Educateappropriate medicaland nursing personnel and departments on the projects
• Support delivery plans and ensure these are regularly updated for all projects.
• Support specific project management training and model practices to both internal staff members and external stakeholders and partners.

• Maintain project information management systems, producereportsandmaintainproject plans.
• Maintain data collection systems that will provideaccurateandtimelydata, including quantitative and qualitative data.
• Maintain databases required by the project.
• Interpret policies and protocols to support theprojectthat are consistent with Trust standards.

• Support the development of a project strategy including research and development toidentify, develop and promote best practice.
• Support test and review of new concepts, models, methods, practices,productsand equipment.
• Support innovative methods to gain patient and public involvement to inform service direction, improvement, user satisfaction and as a tool for performance management.
• Regular horizon scanning of best practice and ways of working within the sector and within project management.

• Maintain up to date knowledge of a range of skills including service improvement techniques andbe responsible fordeveloping andmaintainingown CPDprogramme.
• Develop the role according to patients changing needs and research findings, within the resources available.
• Organiseown work and manage own caseload and practice,identifyingandmaintainingsupportive networks for self and other staff members.
• To keep up to date on research management issues through liaising with the Matron forpaediatricresearch and the wider MDT team attending national meetings if necessary.
• Continue clinical and practice development andmaintainworking knowledge of care pathways relevant tospeciality.

• Undertake primary and secondary research, audits and evaluations asrequired.
• Administer the portfolio of projects and associated studies supported by the theme, liaising with theme leads.
• Liaise with study set-up teams tofacilitatesmooth and effective study set-up whererequired.
• Assistin completing submissions to Research & Development departments.
• Deliver projects within the boundaries of Good Clinical Practice, Research Governance Framework for health and social care and Trust policies.

• Autonomy for specific areas of directorate, to assess the impact of change and make decisions, balancingrisksand priorities.
• Provide advice to the GM/DMT.
• Proactive inidentifyingand addressing issues which are significant within and across directorates.
• Act as a role model,mentorand preceptor to the nursing team.
• Work collaboratively with colleagues across R&D and wider GSTT tofacilitatethe achievement ofobjectivesand shared learning.

This advert closes on Monday 11 Nov 2024